We collect the following data:

• Your name and contact details are collected when you submit a contact form. We will use this information in order to contact you about the query that you have and to provide you with any other goods or services that you are requesting. We may also occasionally contact you to let you know about other services we offer that may be of interest to you. You will be able to unsubscribe from these mailings at any time by clicking on the link at the bottom of any marketing email that we send you.
• We use Mailchimp to send email newsletters which you can sign up for via this website. You will be able to unsubscribe from these mailings at any time by clicking on the link at the bottom of any marketing email that we send you.
• This website uses Google Analytics to collect data regarding how visitors use the website which we use to improve the performance of our website.
• This website uses the Facebook, LinkedIn and Twitter tracking codes which we use to improve the targeting and performance of our marketing.
• This website also uses cookies to improve user experience – you are given the opportunity to opt out of this when you visit the site for the first time.

We process your personal data in line with our legitimate interests as a business to market our goods and services. You can opt out of such marketing activities by clicking on the unsubscribe link in any marketing-related email that we send you. Note, in this instance we may still contact you with information regarding any project work we are undertaking with you.

We do not share personal data with any third parties for their own independent purposes. Your personal data is only processed by the service providers listed above (Mailchimp, Google Analytics, Facebook, LinkedIn and Twitter), who process your personal data on our behalf.

We will not retain your personal data for longer than is reasonably necessary.

Under UK GDPR you have the right to:

• Access the personal information which we hold about you
• Correction and deletion
• Withdrawal of consent
• Data portability
• Restriction of processing
• Objection to processing
• Right not to be subject to automated decision-making and profiling
• Right to be informed

Should you wish to exercise any of these rights then please contact us.

You can also lodge a complaint with the Information Commissioner’s Office who is the supervisory authority on data protection. Please follow this link to find out how you can lodge a complaint.

CADRE uses pseudonymised information, meaning details such as names, addresses and NHS numbers are removed before data is included. Researchers using CADRE cannot see or identify individual children.

Yes, CADRE operates on an opt‑out basis, and parents, guardians or young people themselves can choose not to take part at any time. If you opt out, your child’s data will not be included in the CADRE database.

No, opting out of CADRE will not affect your child’s healthcare, education or social care in any way. Professionals involved in your child’s care will still have full access to the information they need to support them.

All requests to use CADRE data are reviewed by a Data Access Committee, which includes clinical, technical and patient and public representatives. Only projects that meet strict criteria around public benefit, safety and ethics can be approved.

No, CADRE takes a whole‑child approach, bringing together information about physical health, mental health, education and social factors. This helps build a more complete picture of the factors that influence children and young people’s wellbeing.

Data may be provided by local NHS services, education providers and social care organisations that choose to participate. Each organisation remains in control of its own data and plays a role in decisions about how it is used.

CADRE supports both research and service improvement, helping professionals understand what works and where support is needed most. Insights from CADRE can help shape better services and interventions for children and young people.

Yes, transparency is a core principle of CADRE. Approved projects and summaries of their findings will be published so the public can see how the data is being used and what impact it has. The data included in the research outputs will be fully anonymised, meaning that it cannot be linked back to individuals.

Yes, where appropriate, young people can make their own decisions about opting out of CADRE. CADRE is committed to respecting young people’s voices and involving them meaningfully in decisions that affect them.

Access is not limited to any single type of organisation or purpose. However, all applicants who seek to use CADRE data will need to meet strict requirements and high standards. Only high-quality projects that can clearly show how they intend to benefit young people’s health will be allowed to use CADRE data. Approved researchers will be allowed to use the data for ethically approved projects such as clinical trials, population studies and health service improvement studies, as well as for developing digital innovations using artificial intelligence (AI) and machine learning. Those researchers may come from NHS trusts, universities, health charities, pharmaceutical companies and businesses looking to develop services to support the health and well-being of children and young people, and must either hold an honorary contract with one of the data providers or have a letter of support from them as one of their partners as a formal collaborator.  All requests to use CADRE data are reviewed by a Data Access Committee, which includes clinical, technical and patient and public representatives. Only projects that meet strict criteria around public benefit, safety and ethics can be approved.

Approved researchers will be allowed to use the data for ethically approved projects such as clinical trials, population studies and health service improvement studies, as well as for developing digital innovations using artificial intelligence (AI) and machine learning. However, only projects that meet strict criteria around public benefit, safety and ethics can be approved, and the researchers carrying out the analysis must have a substantive or honorary contract with one of the data providers, or have a letter of support from them as a formal collaborator.

If you have questions after reading the site FAQs and ‘About us’ you can contact the CADRE team directly and we’ll be happy to help.